The HDR Innovation Gateway Newsletter  

September 2022

Welcome to the growing community of Gateway users accessing the UK’s only unified platform to discover and access health data sets for research and innovation.

New to the Gateway?

Gateway Collection of the Month

Gateway Collections are curated around a particular theme or topic and bring together related resources such as datasets, papers, tools and data uses listed on the Gateway.

Discover-NOW is the Health Data Research Hub for real world evidence and aims to revolutionise the way health data is used responsibly for research into treating and preventing disease. It supports clinicians, researchers and scientists to recruit patients to studies, develop new treatments, manage and prevent health conditions, and test and evaluate innovations. 

Got a minute to share your thoughts about the Discover-NOW Hub?

• Complete this short survey
• Your feedback will help us understand what's most important when communicating about the data services offered by Discover-Now 

Explore the latest datasets published on the Gateway

Explore the latest datasets published on the Gateway, including these six new datasets from DataLoch:

• NHS Lothian GP data
• NHS Lothian Critical Care
• NHS Lothian Lab Results
• Deaths - National Records of Scotland
• Lothian Community Prescribing
• Lothian Primary and Secondary Care with Phenotypes

Learn how DataLoch data are being used in research via the Gateway data use register, including studies on the effects of COVID-19 on acute cardiac care and the clinical characteristics and treatment patterns of early breast cancer patients in Scotland.

A data story from the CO-CONNECT team 

In this blog post, the CO-CONNET team describe what it took to get the Follow-COVID cohort live on the Gateway, including the manual entry of 47,842 individual data values!

Follow-COVID is a study of over 100 patients across multiple regions within Scotland over the course of 6 years. The study seeks to identify the long term consequences and future care needs of COVID-19 survivors.  

Read the findings from our August Gateway workshop

Our bimonthly Data Access and Discovery webinar series took on a slightly different and extended format for August as we wanted an opportunity to hear and learn directly from some of our Gateway users. 

We began with a quick survey to understand the current level of awareness and engagement with the Gateway amongst our attendees. Gerry Reilly (Technologist in Residence at HDR UK) then delivered a brief overview of the Gateway, covering its past, present and future milestones which set us up nicely for our breakout room sessions.

We are pleased to share the results of our poll, the introductory slides and our post-workshop analysis below!

HDR UK announces new CTO

Health Data Research UK has appointed Professor Emily Jefferson as its new Chief Technology Officer. She will take up her new post at the end of November 2022 and will lead on the development and delivery of technology services, including the Health Data Research Innovation Gateway.

Celebrating 1000 phenotypes

1000 phenotypes have now been uploaded to HDR UK's Phenotype Library. The milestone marks the Library as the largest national resource for information, tools and phenotyping algorithms to allow researchers to harness data held in Electronic Health Records.

Register for an account on the Gateway

Anyone can search and view datasets, collections and other resources with or without an account, but signing up to the Gateway means you can also:

• Send enquiries and apply to access datasets
• Comment on Gateway resources, including datasets 
• Add you own resources like tools and data uses, and create collections
• Apply to access advanced search methods like the Cohort Discovery Tool
  

Did you know that there are five ways you can sign up to the Gateway? Via LinkedIn, Google, ORCiD, Microsoft and through your institution. 

Thanks for reading!

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